September 30
9:00-10:00 Workshop opening
09:00-09:10 Welcome and opening
09:10-09:20 Introduction to the workshop by Peter van den Burg
09:20-09:35 Twenty years of the Spanish program for rare blood donors – Jorge Monge Ruiz
09:40-10:00 EU SoHO Regulation and EDQM Blood Guide – perspectives on rare donor management and provision of rare blood, Richard Forde
10:00-14:15 Session 1: Testing strategies for finding rare donors
Moderator: Nicole Thornton
10:05:10:10 Introduction to the topic and session
10:10-10:40 The never-ending story of blood group discovery and the challenges this brings for rare blood provision, Thierry Peyrard
10:40-11:10 Coffee break
11:10-11:40 Building Strategies for Rare Blood Donors in Portugal, Graça de Almeida and Joana Marques
11:40-11:45 Introduction to break-out rooms’ topics
11:45-12:45 Break-out discussions
12:45-13:00 Feedback from break-out sessions
13:00-14:00 Lunch
14:00-14:15 Conclusions & Looking into the future, Nicole Thornton and Peter van den Burg
14:15-17:30 Session 2: HLA HPA typed platelets
Moderator: Peter van den Burg
14:15-14:30 Introduction to the topic and Session 2
14:30-15:00 Different workflows in use in the Netherlands, Judith Somers
15:00-15:30 Different workflows in use in England, UK, TBC
15:30-15:35 Introduction to break-out rooms
15:35-16:05 Coffee break
16:05-17:00 Break-out rooms: spin-off topics from the presentations
17:00-17:20 Feedback from break-out sessions
17:20-17:30 Conclusions & Looking into the future
20:30 Private visit and dinner at the Guggenheim museum
October 1
9:00-12:45 Session 3: International exchange and cryopreservation
Moderator: Ulrike Paulus
09:00-09:10 Introduction of topic and session 3
09:10-09:45 International exchange of rare blood – Australian experience, Tanya Powley
09:50-10:10 Necessity of Establishing an International Standard for Frozen Blood: Implications for Patients with Rare Blood Requirements, Matt Hazell
10:10-10:20 Introduction to break-out rooms Ulrike Paulus
• Overview of current documentation in use in different organisations for importing/exporting rare blood
• Introduction to considerations for pricing of rare blood
10:20-10:45 Coffee break
10:45-12:00 Break-out rooms:
• Discuss feasibility of agreed minimum information to be exchanged between importing and exporting organisations
• Discuss possible proposals for pricing of rare blood unit
12:00-12:30 Feedback from break-out sessions
12:30-12:40 Looking into the future and conclusions, Ulrike Paulus and Peter van den Burg
12:45 Closing Peter O’Leary
13:00 Goodbye lunch
In the afternoun: It is possible to join the group visit to the Blood Establishment in Bilbao. Please note that you need to sign up for this through the registration form/booking funnel.