Rare Blood Provision Workshop 2025

09:00-09:10    Welcome and opening 
09:10-09:20    Introduction to the workshop by Peter van den Burg
09:20-09:35    Host Country presentation – Jorge Monge Ruiz
09:40-10:00    Impact of the SoHO Regulation on the provision of rare blood, Richard Forde

Moderator: Nicole Thornton
10:05:10:10    Introduction to the topic and session
10:10-10:40    The never ending story of new blood group systems, TBC
10:40-11:10    Coffee break
11:10-11:40    Rare donor programme in Portugal, Graça de Almeida and Joana Marques
11:40-11:45    Introduction to break-out rooms’ topics 
11:45-12:45    Break-out discussions
12:45-13:00    Feedback from break-out sessions 
13:00-14:00    Lunch
14:00-14:15    Conclusions & Looking into the future, Nicole Thornton and Peter van den Burg

Moderator: Peter van den Burg
14:15-14:30    Introduction to the topic and Session 2
14:30-15:00    Different workflows in use in the Netherlands, Judith Somers
15:00-15:30    Different workflows in use in England, UK, TBC
15:30-15:35    Introduction to break-out rooms 
15:35-16:05    Coffee break
16:05-17:00    Break-out rooms: spin-off topics from the presentations
17:00-17:20    Feedback from break-out sessions
17:20-17:30    Conclusions & Looking into the future
20:30    Private visit and dinner at the Guggenheim museum

Moderator: Ulrike Paulus
09:00-09:10    Introduction of topic and session 3
09:10-09:45    International exchange of rare blood – Australian experience, Tanya Powley
09:50-10:10    Case study: challenges of international exchange of frozen blood, Matt Hazell
10:10-10:20    Introduction to break-out rooms Ulrike Paulus
•    Overview of current documentation in use in different organisations for importing/exporting rare blood
•    Introduction to considerations for pricing of rare blood
10:20-10:45    Coffee break
10:45-12:00    Break-out rooms: 
•    output – agree on minimum information to be exchanged between importing and exporting organisations
•    output - prepare a proposal for pricing of rare blood units
12:00-12:30    Feedback from break-out sessions 
12:30-12:40    Looking into the future and conclusions, Ulrike Paulus and Peter van den Burg
12:45    Closing Peter O’Leary 
13:00    Goodbye lunch