Rare Blood Provision Workshop 2025

09:00-09:10    Welcome and opening, Miquel Angel Vesga Carasa, Jenny White, Peter O'Leary
09:10-09:20    Introduction to the workshop, Peter van den Burg
09:20-09:35    Twenty years of the Spanish program for rare blood donors, Jorge Monge Ruiz
09:40-10:00    EU SoHO Regulation and EDQM Blood Guide – perspectives on rare donor management and provision of rare blood, Richard Forde

Moderator: Nicole Thornton
10:05:10:10    Introduction to the topic and session
10:10-10:40    The never-ending story of blood group discovery and the challenges this brings for rare blood provision, Thierry Peyrard
10:40-11:10    Coffee break
11:10-11:40    Building Strategies for Rare Blood Donors in Portugal, Graça de Almeida and Joana Marques
11:40-11:45    Introduction to break-out rooms’ topics 
11:45-12:30    Break-out discussions
12:30-13:00    Feedback from break-out sessions
13:00-13:15    Conclusions and next steps Nicole Thornton and Peter van den Burg
13:15-14:15    Lunch

Moderator: Peter van den Burg
14:15-14:20    Introduction to the topic and Session 2
14:20-14:50    HLA HPA typed platelet support in the Netherlands, Judith Somers
14:50-15:20    Provision of HLA Selected Platelets- The English National Blood Service Approach- "Off the Shelf ", Colin Brown
15:20-15:30    HLA HPA Platelet survey presentation, Judith Somers
15:30-15:35    Introduction to break-out rooms 
15:35-16:05    Coffee break
16:05-16:50    Break-out rooms: spin-off topics from the presentations
16:50-17:20    Feedback from break-out sessions
17:20-17:30    Conclusions & Next steps, Judith Somers and Peter van den Burg
17:50-             Private visit and dinner at the Guggenheim museum

Moderator: Ulrike Paulus
09:00-09:10    Introduction of topic and session 3
09:10-09:45    International exchange of rare blood – Australian experience, Tanya Powley
09:45-10:15    Necessity of establishing an international standard for frozen blood: Implications for patients with rare blood requirements, Matt Hazell
10:15-10:25    Introduction to break-out rooms Ulrike Paulus
•    Overview of current documentation in use in different organisations for importing/exporting rare blood
•    Introduction to considerations for pricing of rare blood
10:25-10:55    Coffee break
10:55-12:00    Break-out rooms: 
•    Discuss feasibility of agreed minimum information to be exchanged between importing and exporting organisations
•    Discuss possible proposals for pricing of rare blood unit
12:00-12:30    Feedback from break-out sessions 
12:30-12:40    Conclusion & next steps, Ulrike Paulus and Peter van den Burg
12:45    Closing Peter O’Leary 
13:00    Goodbye lunch

In the afternoun: It is possible to join the group visit to the Blood Establishment in Bilbao. Please note that you need to sign up for this through the registration form/booking funnel. Busses will be organised to take you to the blood center.